Medical Specialists And Clinical Trials
Mesothelioma Information
Help Finding a Mesothelioma Medical Specialist
Due to the rarity and complexity of mesothelioma, it is essential that patients seek care from experts familiar with the disease and state-of-the-art treatments. The Mesothelioma Applied Research Foundation’s medical liaison can assist you in locating the best mesothelioma specialist to meet your particular needs.
They can also provide you with referrals for mesothelioma clinical trials and standard therapies.
Please contact:
Mary Hesdorffer, Nurse Practitioner
Medical Liaison
Mesothelioma Applied Research Foundation
Phone: (877) 363-6376
Email: mhesdorffer@curemeso.org
Do you have specific questions or concerns about available mesothelioma treatments, including details on finding specialized mesothelioma help? The Mesothelioma Foundation is here to offer support guidance and help. Talk to a mesothelioma specialist for the latest in treatments and clinical trials.
Call Mary Hesdorffer at 877-End-Meso or 877-363-6376.
The Meso Foundation just released the first-ever booklet on clinical trials, specific to mesothelioma. Request a print copy by contacting the Mesothelioma Applied Research Foundation’s nurse practitioner:
Mary Hesdorffer, Nurse Practitioner (703) 879-3820
Email: mhesdorffer@curemeso.org
Information for Mesothelioma Clinical Trial Patients
Finding New Treatments for Mesothelioma: The development of new treatments for mesothelioma is a complicated, expensive, and time consuming process. This is complicated further by even more so by the risks inherent in trying “unproven” treatments. Mesothelioma clinical trials are not the beginning of the research process, but are often the last steps before a drug, procedure, or tool can be released to the medical community as safe to use. While the Meso Foundation can be your guide to finding trials and treatment options, the National Institute of Health (NIH), the National Cancer Institute (NCI), and Center Watch also offer a listing of mesothelioma clinical trials.
Benefits of Mesothelioma Clinical Trials: There is no question that without mesothelioma clinical trials the development of new procedures and medicines would come to a virtual standstill. However, this may or may not be of much concern to a newly diagnosed mesothelioma patient facing a prognosis of a short median survival time. While it is true that clinical trials can be considered altruistic because they help future victims of mesothelioma, this shouldn’t be the primary motivation for participating in trials. With almost no “standard” treatments for mesothelioma in the medical kit bag, clinical trials are the most effective and sometimes the only way a new patient can access state-of-the-art treatment.
Risks of Mesothelioma Clinical Trials: Regardless of phase, all clinical trials entail some risks to the patient. The primary risk is that the treatment may not work and the patient may continue to get worse. Also, because trials are offered in limited settings, being in a trial may involve additional time, travel, expense and effort on the part of the patient. Since one of the primary objectives of a clinical trial is to establish the safety of the treatment, it stands to reason that some participants may experience side effects that could range from discomfort to life-threatening.
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